A Literature Review and Evaluation of National Care Models and Frameworks providing Care for Children and Young People with Learning Disabilities in Wales
Jones, Dawn (2023) A Literature Review and Evaluation of National Care Models and Frameworks providing Care for Children and Young People with Learning Disabilities in Wales. [Report]
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Abstract
Extended Abstract Current Welsh legislative frameworks (Social Service and Wellbeing (Wales) Act 2014 (SSWA, 2014), Wellbeing of Future Generations Act, 2015 (WFG, 2015)), National Clinical Framework, (2021), A Healthier Wales (Welsh Government 2021b)) are supportive of an integrated service model of care delivery, which includes children and young people with a learning disability who have care and support needs. The provision of ‘seamless services’, informed by the active involvement of children and young people and their families and carers in the design and delivery of their care, is a stipulation of the SSWA (Wales) 2014. However, research suggests that there is currently not one consistent service model or set of core principles of care in Wales that shape provision for children and young people with a learning disability. Furthermore, reviews highlight the variability of care across and between health boards and local authorities, which can result in inconsistent experiences for children, young people and their families and carers. This literature review presents an evidence-based exploration of the service models and principles of care that aim to deliver integrated care to children and young people with a learning disability, and to assess their success. The review adopted a thematic, narrative method, drawing on a wide range of literature including government reports, academic research papers, third sector published reports, and a range of grassroots sources. The aim was to produce an evidence-based review for professionals, that would provide an in-depth understanding of some of the barriers and enablers to positive well-being, utilising a solutions-focused approach. The key findings from the literature review are: • There is evidence of positive, creative care pathways implemented by integrative care teams in Wales, in the spirit of the National Clinical Framework and the evidence suggests these could be helpfully built upon and inform a national core offer and standards. • The literature reviewed suggests that experiences are better where there is collaborative working within and between teams, overseen by a care coordinator. • Positive, innovative practice is evidenced by care that is planned with and not just ‘around’ children and young people. This suggests a need for a more consistent understanding of what co-production means amongst health and social care sectors. • An agreed data collection system (with clearer alignment across sectors) is essential to inform and evaluate the provision of care pathways to ensure over-sight of the quality of care provision, and to capture the experiences of children and young people, both positive and negative. • There is a need for robust mechanisms that actively engage with the voices of children and young people, families and carers, to deliver authentic coproduction in the planning of multi-agency strategies across the life course. This finding is of particular significance where the care and support needs of children and young people are complex and profound.
| Item Type: | Report |
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| Divisions: | Social and Life Sciences |
| Depositing User: | Hayley Dennis |
| Date Deposited: | 04 Dec 2024 14:25 |
| Last Modified: | 04 Dec 2024 14:25 |
| URI: | https://wrexham.repository.guildhe.ac.uk/id/eprint/18250 |
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