A case study exploring the management of dyspnoea in motor neurone disease

Davies, Teresa M. and Burkhill, Lisa (2025) A case study exploring the management of dyspnoea in motor neurone disease. British Journal of Community Nursing, 30 (10). pp. 488-492. ISSN 2052-2215

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Abstract

Motor neurone disease affects around 5000 people in the UK at any given time. It is a progressive disease with a poor prognosis and carries a high symptom burden. Dyspnoea (breathlessness) is one of its most challenging yet common symptoms and occurs because of a weakening of the muscles that control breathing. This case study explores the management of a man diagnosed with amyotrophic lateral sclerosis in the community. His advance decision to refuse treatment directive to avoid non-invasive ventilation during the day was managed through a combination of opioid medication, breath stacking, positioning and other strategies recommended by the National Institute for Health and Care Excellence. Individualised care planning and maintaining quality of life was key in his management.

Item Type:	Article
Keywords:	advance care planning, dyspnoea, motor neurone disease, non-invasive ventilation.
Divisions:	Social and Life Sciences
Depositing User:	Hayley Dennis
Date Deposited:	10 Nov 2025 13:46
Last Modified:	10 Nov 2025 13:46
URI:	https://wrexham.repository.guildhe.ac.uk/id/eprint/18370

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