Patient-reported characteristics of pernicious anaemia: a first step to initiate James Lind Alliance Priority Setting Partnership driven research

Thain, Alfie, Visser, Peter, Hart, Kathryn, Nexo, Ebba, McCaddon, Andrew, Hannibal, Luciana, Wolffenbuttel, Bruce H.R., Green, Ralph, Ward, Nicola, Seage, Catherine Heidi, Katrina, Burchell and Ahmadi, Kourosh R. (2025) Patient-reported characteristics of pernicious anaemia: a first step to initiate James Lind Alliance Priority Setting Partnership driven research. BMC Primary Care, 26 (348). ISSN 2731-4553

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Abstract

Background: Pernicious anaemia (PA) is characterised by vitamin B12 deficiency due to autoimmune-mediated loss of gastric parietal cells and intrinsic factor - a specific transporter for B12's intestinal uptake. The Pernicious Anaemia Society (PAS) is a patient-driven charity that recently identified 10 research priorities for improved diagnosis and management of PA through a James Lind Alliance Priority Setting Partnership. To facilitate research addressing these priorities, the aim of this study was to survey PAS members to identify and characterise a cohort of patients to form a PA research repository.

Item Type:	Article
Keywords:	Pernicious anaemia Vitamin B12 deficiency Autoimmune disease Diagnosis Treatment
Divisions:	Social and Life Sciences
Depositing User:	Hayley Dennis
Date Deposited:	15 Dec 2025 11:25
Last Modified:	15 Dec 2025 11:25
URI:	https://wrexham.repository.guildhe.ac.uk/id/eprint/18383

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